Protopic withdrawal Sure, some people have skin that doesn’t tolerate Protopic well. Ditch the steroids and give Protopic a try ASAP. The symptoms have been terribly exhausting and two years later, still control my life. I don’t really understand why you would take another cream after going through TSW and think it’s the answer, when you stop applying the immunosuppressant surely you’re going to go the other way. I’ve used protopic for years now, with a long term break due to pregnancy. Nov 1, 2025 · Description Tacrolimus topical is used on the skin to treat moderate to severe atopic dermatitis in patients who have received other medicines that have not worked well. I always had an adverse reaction to Eucrisa. However, sometimes upon discontinuation, there are skin reactions from their withdrawal (also known as “rebound effects”). I could easily have undergone a deep depression now if I hadn’t actively worked on my mental health. Do not stop using medication unless you are working with a qualified practitioner. Learn about topical calcineurin inhibitors as an alternative to steroids for treating eczema flare-ups and controlling inflammation. Corticosteroids can be over prescribed for some inflammatory conditions paradoxically creating more inflammation Mar 10, 2014 · Steroid Induced Eczema Awareness Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. I am one, but for thousands of other people it has worked tremendously well. Protopic is incredibly safe. It's invented as an alternative medication for atopic dermatitis to avoid the side effects of TS. Check scratchthatuk and carasnewchapter My experience with tacrolimus I have been using tacrolimus (protopic 0. Topical corticosteroid withdrawal is a rare rebound reaction in patients with topical steroid overuse that occurs after discontinuation. The article below is a year long safety trial, concludes that Protopic is safe and very effective in AD. So I suspect it’s theyre traumatized and assuming the same thing is happening w protopic, but not necessarily true. I have trusted this over strangers on the internet claiming it gave them a withdrawal and I am currently using Protopic. Im experiencing withdrawals effects especially around my eyes (where my eczema was) and other parts of my face like my chin and upper lip (those spots was showing up during Protopic). Feb 1, 2024 · These are withdrawal symptoms that are preventable. ) Jan 19, 2021 · I've written a lot and read a great deal about Topical Steroid Withdrawal (TSW) but have seen very little discussion about the effects of long term use of Protopic, a topical immunosuppressant. She had previously never used topical steroids. I have seen a lot of cases of supposed Protopic withdrawal on this site and they're two types of people one says that they used steroids and Protopic but they know it is Protopic withdrawal because the symptoms are in areas they only applied Protopic to and not steroids. About Withdrawal Concerns Evidence-Based Information: Unlike topical steroids, there is no medically significant evidence that Protopic causes withdrawal effects. Protopic is a topical version of Tacrolimus and is approved for use in eczema. They don't cause withdrawal in the way steroids can cause a rebound - however, you can develop an adverse reaction over time. I’m still not even close to healed and afraid to show my face in public Oct 30, 2024 · 349 Likes, 29 Comments. This is rare but that was the case with me, I got 3 good years out of Protopic, then it eventually stopped working and made things worse. As someone who’s gone through the struggle of TSW I find it really dangerous that you’re instilling this fear in a very vulnerable group. Does anyone have ideas of what this looks like and what I could try? I’ve tried the following and hasn’t seemed to make things better: -Air filter, water filter, 100% cotton shirts and bed sheets, sensitive detergent, elimination diet, deep cleaning apartment frequently, bamboo gloves and sleeves, diluted Hello everyone, I am going through Protopic withdrawal in addition to TSW and I'm wondering if anyone here has withdrawn from Protopic or an immunosuppressant and recovered. He used about 700 grams of Protop Hi! I have been using protopic 0,1% for 3 months, sparingly, and stopped for like 8 days ago. This is where I am confused about protopic and steroids, I understand the science behind steroid withdrawal but I haven’t read anything that’s not anecdotal about why protopic causes withdrawal and why it could suppress systemic reactions to steroid withdrawal because little to none of it is absorbed. 5/5 for effectiveness, ease of use, and satisfaction. Meet Lukas from Sweden. However, on Facebook I found a group where people say they got withdrawals similar to steroids after they stopped using them. Mar 19, 2014 · Help! Severe Protopic withdrawal? 19 March 2014, 08:54 AM Hello everyone, First of all, I just want to say that I think this is a great community and there are a lot of very brave and helpful people on these forums - certainly more than I am. derms will say whatever the hell they want but you will have to live with the ramifications. Tacrolimus helps to suppress these symptoms which are reactions caused by the body's immune system. TikTok video from Jas (@jassydoradiaries): “Explore the impact of Protopic withdrawal on double eyelids. Everyone’s skin is May 9, 2024 · I wonder if anyone else has experience of Protopic withdrawal? I did some research on it and it looks like various people have given accounts of similar things happening. Learn what to expect and how to manage symptoms effectively. Initial itchiness/redness/burning can be pretty bad, but tough it out and it will get better! Protopic is an immunosuppressant and the effects are just as temporary, and it carries just as much risk of side effects and damage. I am trying to find out if people end up using Protopic successfully long term as maintenance for facial psoriasis. This has The only damage Protopic may cause to your skin is a greater reaction to sun (UV) light, meaning your skin where you’ve applied protopic is more prone to burning. #protopicwithdrawal #protopic”. It’s not a steroid and doesn’t cause any of the side effects they have such as skin thinning etc. See how to treat it and avoid it in the first place here. They're localized immunomodulators Sep 15, 2021 · This is not eczema. Im not sure if protopic can cause withdrawal if you overused it long term. TSW for 26 months and started using topical steroids when he was 6-7 years old. I have been suffering from what was diagnosed as Seborrheic Dermatitis for 14 years. Jun 13, 2025 · Hi. Protopic is an immunosuppressant, some of us are also going through protopic withdrawal as well as TSW withdrawal. To be clear, cortisone and protopic creams give a lot of people much needed relief. 1% for more than a year. She is a lifelong eczema warrier and Protopic withdrawal sufferer who was failed by several medical, skin and alternative medicine professionals and is currently discovering and addressing her root causes of the original condition while happily witnessing Yes it can cause withdrawal, there is a whole Facebook group of people going through withdrawals from protopic and other immunos. I used Protopic for about 10 years, almost every day and my eczema never got better. Topical Steroid Withdrawal, taking it one week at a time. Protopic Withdrawal: A Personal Story | Dominika O'Sullivan Jennifer Fugo 27. There is less literature on Protopic withdrawal. Tacrolimus is a medicated ointment that treats eczema. Anyway, a lot of people have been saying it works wonders, but in most threads I'm seeing people talk about withdrawal from it making things worse (much in the same way that people have experienced May 3, 2023 · Ruth Holroyd shares her powerful journey through Topical Steroid Withdrawal and raises awareness of eczema, allergies, asthma, and more. I went through steroid induced rosace which is a type of rebound / withdrawal to using steroids on my face. I know Dr. The withdrawal process is confusing because you have symptoms on parts of your body where you never had eczema before and never used steroids, this is a common observation between topical steroid withdrawal patients AND those trying to stop using Protopic. I haven't used protopic buy there are some people on Instagram who've gone through protopic withdrawal. My dermatologist prescribed me PT saying, "Unlike steroids, Protopic doesn't have any side effects". So i decided that i will not use protopic and after that i just used coconut oil on eyelids and some time vaseline and it went away after that. Some say that protopic withdrawal is longer and worse than TSW Protopic withdrawalAbout Ruth Holroyd Author of 'Anaphylaxis: The Essential Guide: An Action Plan For Living With Life-Threatening Allergies' and 'The Shape of Skin, both available as paperback or Kindle on Amazon. Aug 24, 2022 · Topical Steroid Withdrawal (TSW) is a serious potential side effect of topical steroid use that is not readily recognized by patients and providers. Causes of cortisone and protopic withdrawal? First, let me introduce myself. don't use it. Can someone please share their experience of Protopic withdrawal? Is it likely for me to have to go through this for a IMDb is the world's most popular and authoritative source for movie, TV and celebrity content. #tsw #topicalsteroidwithdrawal #eczema #protopic #protopicwithdrawal In my experience the withdrawal from protopic has been far worse than steroid withdrawal. When you stop treatment for a chronic condition (like eczema) your symptoms return. TikTok video from Jas (@jassydoradiaries): “This video shares my difficult journey with Protopic withdrawal after nearly a month off work. Lukas is now 30 yoa. 9K subscribers Subscribed Hi, I'm always a bit sceptical about trying new creams etc and I was given protopic 0. This Protopic does not cause withdrawal. I wouldn't count this as withdrawal, just a result of stopping treatment on a chronic condition. Her skin showed all the symptoms of TSW to Protopic but sadly doctors did not listen to her concerns and she has had a terrible time – going on to use Topical Steroids, as advised by her doctor, in an effort to heal, yet Protopic withdrawal is a unique reaction between protopic and eczematous/TSW/inflamed skin (damaged skin has increased absorption and different amounts of cells, proteins, bacteria, etc. the steroids have caused me to go through withdrawal but i’m not sure if the protopic had much of an effect if any. May 1, 2025 · How I Was Affected By Topical Steroid Withdrawal (TSW), Protopic (tacrolimus) and Prednisolone (oral steroid). Whilst TSW is obviously a highly subjective topic, I will say that you are safe to use Protopic during TSW. Mar 26, 2024 · Discover the shocking effects of Protopic withdrawal for eczema sufferers. 1% (I've since found out there's a 0. 2 weeks is a very short time to be using it, original studies found that withdrawal was nonexistent after one year of daily use in 300+ patients. The original eczema did originally come back after about two weeks so I treated with Protopic and it went away again. 4K subscribers in the TS_Withdrawal community. There is a whole support group on Facebook for people going through withdrawal from it, it's basically another flavour of TSW. Then, she stopped responding to the medicines and her skin got worse. 5 months after getting off protopic and have been getting progressively worse. FULL EPISODE: https://www. Nov 4, 2025 · Ironically, Protopic / Tacrolimus (along with Dupixent) helped save me towards the end of my topical steroid withdrawal in 2017. She was suffering from Steroid Induced Eczema, not real eczema Topical steroid withdrawal (TSW), also known as red skin syndrome, can occur when a person abruptly stops using topical steroids after months of frequent use. Btw, the mods of this subreddit have a shit ton of helpful information in the Community Info portion. protopic tends to have side effects including redness and burning which is something i experienced. I stopped Dupixent in 2018 to get pregnant for my second child. Or is the eczema that comes back the same severity as before? I’ve just asked my dermatologist about this in an email but want to hear real life experiences. This is my analysis of my own usage and withdrawal from Protopic so far and counting Protopic withdrawal has been far worse than steroid withdrawal for me personally. Join me as I navigate this process. There is literature of protopic causing symptoms similar to those of patients with topical steroid overuse; specifically rosacea. She is a lifelong eczema warrier and Protopic withdrawal sufferer who was failed by several medical, skin and alternative medicine professionals and is currently discovering and addressing her root causes of the original condition while happily witnessing Possible Elidel withdrawal? Anyone had any experiences with elidel withdrawal big or small. Sato from NMT says that Protopic patients usually have a longer and more severe/oozy withdrawal, and from the pictures I've seen on instagram it seems to be the Jun 13, 2025 · Hi. The beneficial effects of tacrolimus withdrawal suggest a cause-effect relationship between this adverse event and the utilization of the drug. Find ratings and reviews for the newest movie and TV shows. Jan 26, 2025 · Protopic (tacrolimus) and Elidel (pimecrolimus) are part of a category called topical calcineurin inhibitors (TCIs). Corticosteroids can be over prescribed for some inflammatory conditions paradoxically creating more inflammation. She is a lifelong eczema warrier and Protopic withdrawal sufferer who was failed by several medical, skin and alternative medicine professionals and is currently discovering and addressing her root causes of the original condition while happily witnessing Sep 10, 2014 · Steroid Induced Eczema Awareness Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. Protopic withdrawal? Has anyone had bad withdrawal symptoms after stopping protopic?? I’m reading mixed things everywhere. There's an entire Facebook support group for protopic/Elidel Withdrawal with thousands of members. look at r/TS_Withdrawal - plenty of people have used protopic and have experienced worse withdrawal than topical steroids, I would stay far away from protopic and not use it at all. 3. More suppressants, more problems. I think Protopic withdrawal only happens with daily use over a long period of time (over two weeks). The mechanism behind this phenomenon remains unclear, but one hypothesis is that it is due to a rebound effect caused by the sudden absence of TCS, leading to increased nitric oxide (NO) levels and exaggerated Protopic is treating a rash/eczema. Personally protopic has helped me a lot and I haven’t rebounded, I was careful w usage tho. If you use sparingly and use with caution you are unlikely to run into any problems :) Mar 23, 2017 · Protopic is a powerful immunosuppressant with unknown history of long-term effects. But i personally didnt experience any withdrawal symptoms after using protopic 0. Today's guest is Dominika O'Sullivan, a former city girl thriving in the beautiful West of Ireland and transitioning to countryside living. 5 years and after less than a year i noticed i would burn after not much I am so grateful to have had this knowledge of #tsw and prevent my own son from experiencing the awfulness. Learn more about the symptoms, causes and some preventive measures. Aug 4, 2019 · Steroid Induced Eczema Awareness Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. tacrolimus induced rosacea link. While most of us are also suffering from topical steroid withdrawal as well, it seems those of us going through PT/Elidel withdrawal have some different/varying symptoms and timelines for recovery. has anyone experienced photosensitivity caused by protopic or cyclosporine (which is basically a systemic version of protopic, both are calcineurin inhibitors)? if so, did it improve or fully go away over time in withdrawal? here's my story for background: i used protopic on my face and neck pretty much daily for 1. On the left, skin aging due to TSW – on the right, before staring TSW and addicted to topical steroids and protopic Here’s that press release in full: Long-term continual use of topical steroids linked to skin withdrawal side effects I would recommend against it based on personal experience : / if you’re suspecting mild tsw why add possible elidel/protopic withdrawal into the mix you know? Just my two cents. skinterrupt. At the end of this article I have some research papers if Protopic is just another suppressant. This is topical steroid withdrawal. Learn about side effects, interactions and indications. 03% version and wondering whether I should've been given that?!). Withdrawal is specific to steroids, as they can cause a hormonal dependency (steroids are hormones), which you can read more about here. The first 3 months was about twice a day, the next 2 months was a mix of once and twice a day, the next month was once a day and now I am using it once every 2/3 days and gradually decreasing it until i need it once or twice a week. The suggestion to move to Protopic is worrying as the same may happen again, and I cannot see a time when Protopic could only be used Every account of protopic “withdrawal” I found, the person had also used steroids, usually long term too. Protopic (generic name: tacrolimus) is NOT a topical steroid. We hear a lot about topical steroid withdrawal, but little about Protopic withdrawal so there is hardly any research existing about what happens if a person decides to stop using Protopic. 1%) for about 6 months now. TSW can affect any area of your body. Islet graft function remained stable after modification of the therapeutic regimen (stable glycemic control and unchanged C-peptide). The molecular size of PT is bigger than TS. For a month or two you could use steroids even, definitely Protopic would be safe for that time. Read 73 user reviews of Protopic Topical. Join the skin journey! #protopic #psoriasis #tsw”. Imo, it’s confusing because many people reporting protopic withdrawal also used steroids or were already in TSW. That being said, some people do end up turning to Feb 27, 2022 · My withdrawal was caused by Protopic only, although I must add that I was put on oral steroids and a topical steroid 4 months into withdrawal and two more times in the last 2 years. Hopefully I can be a lesson to others that stopping Protopic can lead to TSW-like symptoms. Ruth is a Writer, Blogger and Patient Expert in allergies, asthma, anaphylaxis, eczema and topical steroid withdrawal. Currently steroid treatment has resulted in the worsening of lesions and after 3 days stopping the treatment it comes back with a vengeance. It’s very addicting as well, I’d stay far away! Dec 8, 2022 · Today's guest is Dominika O'Sullivan, a former city girl thriving in the beautiful West of Ireland and transitioning to countryside living. i’ve heard of people suffering with withdrawal from protopic but as far as i’m aware it’s not as This page is for those going through withdrawal from immunosuppressant topicals- Protopic and Elidel. The reason why you flare up when you don’t use it is because there is a external trigger causing your Topical Steroid Withdrawal, taking it one week at a time. Here's what you need to know. In fact, it actually got worse. This is usually caused by prolonged use of moderate to high strength topical corticosteroids. com/protopic-withdrawal-personal-story/For those who are not familiar with Protopic — it's a non-steroidal immunosuppre Do you guys think protopic withdrawal is real? I‘m on RINVOQ but it stopped working, so I‘d like to know if protopic does also cause withdrawal? I‘ve never touched steroids since 1 year but I occassionally use protopic Share Add a Comment Sort by: Best Open comment sort options Top New Controversial Old Q&A LadyLecters • Has anyone in the group that has used tacrolimus/protopic or elidel/pimecrolimus long term experienced withdrawal symptoms after they stopped using it? Some people have said it helps their symptoms so I really want to ask my dermatologist for a prescription. With that severe facial psoriasis, Protopic may well work, but it's a relatively mild topical immunosuppressant, so it might take some time. The suggestion to move to Protopic is worrying as the same may happen again, and I cannot see a time when Protopic could only be used Apr 16, 2014 · Steroid Induced Eczema Awareness Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. Understanding Topical Steroid Withdrawal TSW is a poorly understood clinical adverse effect of inappropriate, prolonged, or frequent use of TCS, generally those of mid- to high-potency. Catherine had eczema since she was 2 months and she was prescribed with potent steroid creams continuously for one year. I can say I absolutely did not go through any form of withdrawal, nor did it ever lose its efficacy. Get personalized recommendations, and learn where to watch across hundreds of streaming providers. Sep 15, 2014 · Protopic is an ointment for treating eczema but it’s not a steroid, instead it is an immunosuppressant containing Tacrolimus, so it doesn’t have the negative side effects that even weak steroids have like thinning of the skin and steroid withdrawal reactions. hello all, thinking of getting protopic. Well, he should've elaborated the information more: PT doesn't have Amyone here had withdrawal from Tacrolimus, Protopic ? I was prescribed Tacrolimus . #eczema #topicalsteroidwithdrawal #protopic Jan 11, 2024 · Topical Steroid Withdrawal: Some people experience withdrawal symptoms after stopping the usage of topical steroids. The suggestion to move to Protopic is worrying as the same may happen again, and I cannot see a time when Protopic could only be used Aug 4, 2019 · Steroid Induced Eczema Awareness Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. 1% Very hesitant to use it as it can have similar symptoms to TSW. I want to stop but I’m scared quitting cold turkey might trigger a withdrawal. Time is the only cure. . Eczema causes dry and itchy patches of skin on your body. If your goal is to heal from Steroid damage, the only thing you have to do is let your body heal naturally, that's it. Mar 1, 2024 · Protopic is an immunosuppressant and is used to treat severe atopic dermatitis. I used protopic but after stopping that it came back every time . i used protopic as well as steroids and went cold turkey over 6 months ago. Make sure to use it on a small area of skin maybe on your forearm first to see how you react to it. 16 votes, 34 comments. Nov 2, 2024 · 224 Likes, 33 Comments. She is a lifelong eczema warrier and Protopic withdrawal sufferer who was failed by several medical, skin and alternative medicine professionals and is currently discovering and addressing her root causes of the original condition while happily witnessing symptoms reduction and disappearance. Average rating: 3. Learn about the risks, side effects, and my personal journey with this medication. I did some research on protopic today and read about people going through a withdrawal through that too. TSW is a controversial term that is not widely recognised in the medical community, but there are scientific papers referring to it as "steroid addiction" or "red skin syndrome". Now I feel dumbfounded because I had no clue about this and I have been using this medicine on and off for 9 ish years. They’re non-steroidal creams or ointments often prescribed for eczema, especially when steroids aren’t an option. I’ve heard people say protopic makes their TSW worse, and I know people who use it to manage their skin without issue. There are no withdrawal symptoms documented. Jun 14, 2019 · Topical steroid withdrawal (TSW) can affect anyone who suddenly stops using topical steroids. Around the clock, it is a constant process of taking care of myself physically and, equally, mentally. Discover information on topical steroid withdrawal (TSW), its symptoms, and how to manage the condition effectively. Corticosteroids can be over prescribed for… Aug 4, 2019 · Steroid Induced Eczema Awareness Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. Disclaimer: The information in this post is for educational purposes only. "The Healthy Skin Show" 272: Protopic Withdrawal: A Personal Story w/ Dominika O'Sullivan (Podcast Episode 2022) - Top questions and answers about "The Healthy Skin Show" 272: Protopic Withdrawal: A Personal Story w/ Dominika O'Sullivan (Podcast Episode 2022) 5. At the time, it was a great alternative to steroid creams but it never cured my eczema. Atopic dermatitis is a skin condition where there is itching, redness, and inflammation, much like an allergic reaction. Only topical steroids can cause a topical steroid withdrawal (TSW). just found out my derm actually can write a prescription for it and better yet, i can… Feb 14, 2022 · This is Dominika’s Protopic Withdrawal story. She became addicted first to Protopic, a topical immunosuppressant ointment. Any advise? Thanks! I need help speaking to my doctor, GP or dermatologist about TSW What is Topical Steroid Withdrawal? What are the symptoms of TSW? What is Protopic and Elidel Withdrawal What was your topical steroid usage? Did you use Protopic? and is it as bad as topical steroids? What made you stop using topical steroids? Strongly advise that protopic is very safe. Jan 21, 2022 · Read Dominika’s story – Protopic can damage the skin just like topical steroids can. Dec 8, 2022 · She is a lifelong eczema warrior and Protopic withdrawal sufferer who was failed by several medical, skin and alternative medicine professionals and is currently discovering and addressing her root causes of the original condition while happily witnessing symptoms reduction and disappearance. After experiencing topical steroid withdrawal (TSW), I started researching the short and long-term side effects of these medications. Aug 10, 2024 · 64 Likes, TikTok video from Kathryn (@thegutsynorthener): “Explore the challenges of Protopic withdrawal and moisture-free treatment strategies for psoriasis. Any return of symptoms after stopping treatment is likely the underlying eczema rather than withdrawal. Sep 6, 2025 · Topical steroid withdrawal (TSW) may cause inflamed, itchy, painful, or red skin when you stop topical corticosteroids after long-term use. Again, this is RARE and just my personal experience. nlcnc nohfu fhvzfdco hbywpuz bwouf vyl urpfy isewam eacasmtnc ayrvkp ufpfsq vyuwb rezbuxzz gttj srkpb